Sunday, January 24, 2010

Crazy kids

It's funny to see our little babies develop personalities.. Connor has proven and continues to prove that no tube is too big to rip out.. he has successfully performed surgery on himself by ripping a ventilator tube out of his mouth (all the way from down in his chest) c-paps off his face, and temperature probes off his body. When I saw his first cpap machine, I new it didn't stand a chance and figured he'd have it off pretty soon. Sure enought, he's now on his second version of cpap, because the first he kept pulling off his face. He also really dislikes it when we change his diaper, wipe/suction his mouth, check his temperature, or really anything except for kangaroo care or leaving him in his little incubator with the covers down to block the light.. He loved it today when Karisa held him and sobbed audibly when we put him back in the incubator. It really was the first time that we've heard him cry, other than a wheezing sound. it's still obviously a premature-lung cry, but at least it sounded like a baby. A nurse standing about 6-7 feet away said she could hear him, and in the past we've had to put our heads very close to him to hear any sound at all. He is at 2 pounds 12 ounces tonight, and has gained a lot of weight recently, almost doubling his birth weight of 1 pound 10 ounces. Yesterday for about an hour he successfully breathed room air with no help from a ventilator, cpap, or anything! His nicknames are "Con-man, and "Dong" (for ding and dong--Mckenna is "ding")

Mckenna has lethargic movements, and constantly holds her hands out, almost like she's showing us how open and wide she can open her hands. She loves to put her hands over her head, on her head, or covering her eyes. It's almost like she is telling us that she's had enough and covers her head for comfort!! She opens her eyes really wide when she's feeling well, and she has big blue eyes. The eyes can't focus very well yet according to the doctors, but they certainly are wide and we can usually tell when she's feeling OK because the eyes get wide and she just looks up at us when we're doing her "cares" (every four hours the nurses have a schedule where they change diapers, etc). She doesn't cry as much as Connor, but she's dealt with a lot more with her surgery, lung disease and pneumonia. A diaper change is no big deal at all for her, contrary to her twin brother. She is still very high on oxygen support, on an aggressive ventilator, and we are still pretty worried about her. She really hasn't improved on the oxygen, and for some reason really seems to be getting worse instead of better. Her nicknames are "Peanut" and "Ding" and some of the nurses call her "little miss Prissy," since she has such funny hand movements. She weighs 2 pounds 10 ounces at the moment.

1 comment:

  1. thats so neat to be able to see some personality coming! Connor sounds like one tough dude...he might be a handful when he's a teenager! Lol
    How do you guys de-stress with all thats going on with McKenna? I cant imagine you ever completely get to relax. I hope she gets better soon!

    ReplyDelete